Hi,
I am writing this more to express myself than even to specifically ask
questions, kind of a "state of the state" address. I will try to make it
non-tedious, and to the point.
Since this is a verbal behavior list I will say thank you to this list and
to this style of programming that I believe is incredibly helpful in
letting parents have a feel for where they should begin with their child,
how to do and interpret an ABLLS, and get a feel for where your child is
sitting in terms of overall development and how importantly you can use
this assessment tool to steer IEP goals using this. A great help for me,
and a great way to see how your child falls in terms of his overall
development, and what areas need to be addressed pronto.
That being said, starting at the beginning of my autism journey I was happy
just to know about Lovaas and ABA and D.T. and grabbed onto those
principles like someone drowning at sea. Feeling at that time so grateful
for this vehicle to help my child and for awhile basked in the glow of just
keeping the D.T. program running, only concerned about what program was
next, working hard and fast and furious to help him acquire new skills and
move forward especially in the area of language.
The old saying that ignorance is bliss is incredibly true, and IF only I
could have stayed in my little cocoon of d.t. and home programming. But
that was not meant to be and not in my child's best interest.
So, now like the rest of you with kids who are school aged, I move on to
Step II learning again new things and trying to increase my learning curve
to keep up with challenges that now face me which are daunting. I cannot
retreat into the D.T. trenches anymore this is a brave new world, but I am
not that brave.
So now I embark on terms like pivotal behaviors, functional assessment,
self management techniques, inclusion, mainstreaming etc.
How do we parents do it all? And more importantly how do we not? Every time
I try to back off and let someone else educate my son, I find that
unfortunately they don't know how. So, despite the fact that we are
parents would like to "take five" catch our breaths it's not possible.
If I had to share some of the things I have learned and put them in laymans
terms, LANGUAGE IS KEY, Language is a pivotal behavior. The theory behind
this is that if you teach one pivotal behavior it is a ripple effect and
other good things will happen. If you teach a child to mand for instance,
you are giving them power, that power in turn will decrease unwanted and
inappropriate behaviors such as tantrumming for items they cannot
label. (Thank your Robert and Lynn Koegel from Univ. of Calif.), they
taught me about pivotal behaviors. Secondly is you cannot extinguish an
unwanted behavior without replacing it with something more appropriate. If
the child is screaming at the door, you cannot simply say No, stop that,
you must teach a replacement behavior, i.e., manding so you replace the
screaming with an appropriate behavior.
Thirdly, I am embarking on learning how to perform functional behavioral
assessments since once you identify that your child has problem behaviors,
you must now figure out the why's of the behavior. What is the behavior
trying to accomplish and when and why do the behaviors occur and find a
pattern if possible, and after doing so, teach a replacement or provide
support for the child to help eliminate this inappropriate behavior, and
once again for me anyway, it bounces me back to LANGUAGE. If he is
tantrumming to have something removed-- Teach him to say NO, stop it, let
go etc. If he is screaming because he wants something, teach him to mand
for it, and if he cannot understand language well enough to understand not
now, or later, make a visual schedule to show him/her the sequence of
events of the day to alleviate the frustration that not understanding the
concept of time involves.
So, all that being said, does anyone have or has anyone performed
functional assessments using a certain form that I could beg, borrow steal,
buy, etc. I have made up my own behavior sheets, but if there is something
out there already I would prefer to use one that has already been found to
be an effective way to collect data. Even in doing my informal assessment
the behaviors we are charting are for the most part avoidance behaviors, "I
don't want to behaviors." So, now we will need to figure out what to do to
give him more control, but still maintain compliance.
So, signing off and hoping I didn't bore anyone, if you have any data to
share on functional behavioral assessments or how you have used this data
to formulate a plan to deal with behaviors I would love some help in this
area. My school cannot help me with this, I have already asked.
Thanks for listening to me ramble.
** Also if anyone is interested in a workshop on performing a Behavioral
Assessment I am in contact with someone who is willing to do a half day or
full day workshop on this topic. Let me know if you would be interested. I
would be happy to set this up if there is an interest. This would be in
Central, N.J.
Thanks
Cate