Dear List,
Not long ago there was a post on the AUTISM list, and I believe the ME list
about lead therapists, consultants, etc., and responsibilities, etc. It was
very good.
There was also a thread about whether one had an obligation or
responsibility to warn other parents of unreliable or difficult therapists
and/or consultants.
I have wondered for a long time where we draw the line between letting
bygones be bygones and chalking up a bad experience to experience or
reporting, either without a name or with a name. I think this is an
important issue for parents, and of course therapists since they are
effected, but as parents we have so much to lose.
Recently we had hired a person who said they would act as a lead therapist
paying them more than any of our other therapists with the understanding
they would help run meetings, write programs, help with data and spread
sheets, information for therapists, training in particular since I am so
tired and working directly with my son in 1-1 DTT as well, learning about
him and how to help him in a real way. This person did NOT do this. What
was done was either done late, not at all or in fragments and never
delivered. Hours promised were canceled fairly frequently and when the
person came, they came more because they had slots available and apparently
felt not actually spending REAL time working with my son was okay. The
person observed a few times, less than they said they would other
therapists maybe three or four times max, less with others, and showed the
therapist for instance how to prompt Picture Activity Schedules, but NEVER
actually came and worked with him on this theirself and never actually did
DTT on a regular basis to learn how he learns best, establish pairing and
develop a relationship. They told our person in Florida who was coming up
that they would take care of certain things and did not. I feel very gypped
and very troubled by this, and want others to know that, but don't want to
be vindicative. Yet weeks later it is clear this person has not done half
of what they eluded to and we are having to start all over again.
My son is not a small, easy kid in the sense of being immediately patient
and cooperative, on the other hand people have started and taken to him
very fast and liked him very much, and he is very well related to most
people. He is not violent, or aggressive, although once in a while he yanks
hair, but does not even pull it in the real sense to hurt, or bite or
anything.
A year ago we had a person act as a consultant who was not qualified,
charged a lot and was VERY, TERRIBLY unreliable, etc. This has not been our
best year, and I feel like I am seeking out of state half the time for
people to possibly help us, because of the local situation. The person was
also a parent who had done programming and is different than the so called
lead therapist.
My question is what do you all expect from a lead therapist. How long would
you give this person who canceled their first appointment for a supposedly
good reason, but basically continued missing, being late, etc., fairly
often for the times scheduled. The consultant from Florida, not a big name
was helpful, but said she could only do so much if there was not a game
plan, dialogue, reliability and program sheets, etc., to follow and work
from and adjust.
I agree.
I want to know how many hours do you all plan on working with the senior
level or lead therapist and how much do you pay especially in New England
for experience and what are your expectations. I hate to get too cynical
and bitter, and I want to remain open and caring about new staff.
Jennie